Saturday, June 11, 2011

A Special Case?

Last night I took some time to really search for other Type 3 blogs; people who care for a diabetic. As usual, most were parents of a diabetic. I did come across one or two that were about their significant other and the struggles they face while helping to care for their diabetic partners and how they dealt with the constant diabetes care. What I have yet to find is another spouse that is around my age that deals with the types of things I deal with. I say around our age because that plays a big part. Sure older people have complications. That is "considered the norm" But it seems that Vince and I are more special than I thought. Special how? Well, just to start with, I have yet to find in all of the people I have connected with, someone being diagnosed as young as Vince. He was diagnosed at 6 months old. Very very rare. I have met people whose child was diagnosed as a baby, but no one has "beaten" his 6 month mark. Even all of his doctors are amazed still to this day when we remind them how old he was when he was diagnosed. On to his complications. I have not connected with anyone that is around our age (late 20s - early 30s) that has as many complications as Vince does. Why does he have so many complications? We ask ourselves this from time to time. He looks back to his care as a child. He saw his pediatrician for his diabetic care until around the age of 16. That is probably one factor. Pediatricians are not trained to handle the specifics of Diabetes. Then he began seeing an Endocrinologist around age 17 or so. He began to use his first Minimed insulin pump.  After a year or so, he had to go back to injections because the pump was causing infections on and under his skin. He stayed on shots for a few years after. As with any child growing up with diabetes, he had a few years in his teen/young adult life that he wasn't as diligent with his care as he should have been. But these years were short and he soon took charge, all the while, his A1C's remained near what they are today; 6-7%. So all of that being said, we are left with the same question and no answer: why does he have so many complications? His complications began in his mid 20s and became more prevalent by 30. I am sure a few of the factors I have mentioned have contributed, but I refuse to believe that they are the sole reason he is so sick today. There is a small part of me that believes he may just be "one in a million" with this disease. Diagnosed so young and dealing with so many serious complications so young. I just have yet to find another story even similar to ours. Yes, it is more than comforting to connect with the DOC. It has done me wonders. But at the end of the day I am still left frustrated that once again, we seem to be in this category all alone. 

5 comments:

  1. Sandy: Thanks for sharing. Yes, it seems Vince (and you) do have some unique circumstances, as far as the DOC is concerned. I've met and talked with a few adults through the years diagnosed less than 2 years old. None are online though. I understand Duke Univ. has done research and found the youngest at just several months old. as far as complications, it could very well just be genes. No one really knows, but Joslin is researching this - why some get complications while others don't. So much is still a mystery, it may be some time before more is clearly known. Regardless, thank you for being online and sharing the unique perspective - one that really needs to be told.

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  2. Admittedly, this post scares me a bit Sandy. Joe's A1Cs are all between 6 and 7...it hits home that complications are not directly related to "control" (using the term "control" loosely). I already knew this...Vince is living proof. Love you.

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  3. Sorry to scare you, didn't mean to. :( I know a few of the things (like only seeing a pediatrician instead of an Endo) contributed to his complications but I just can't believe that is the only reason. I don't know what his a1cs were as a child either. Everyone is different. You take great care of Joe so just know that you are doing your best and hope for the best :)

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  4. Hi, Sandy - yours is the second or third reference I have run across to "Type 3," meaning, if I understand correctly, the spouse or significant other of a diabetic.

    We aren't in your category either - DH is 60 and I'm a few years beyond that. I'm just beginning to learn about this stuff.

    The part about the person diagnosed in 1949 suggests that if you can manage to keep your blood sugar where it is supposed to be, you are much less likely to suffer from end-organ damage and all that other nightmarish stuff that sounds like a cascade of falling dominoes. Do I understand that correctly?

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  5. That is the thing though. Way back then, they didn't have great glucometers and care so the tight control over sugar levels couldn't have been there, yet people don't have complications...no answers :)

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