Saturday, June 11, 2011
A Special Case?
Last night I took some time to really search for other Type 3 blogs; people who care for a diabetic. As usual, most were parents of a diabetic. I did come across one or two that were about their significant other and the struggles they face while helping to care for their diabetic partners and how they dealt with the constant diabetes care. What I have yet to find is another spouse that is around my age that deals with the types of things I deal with. I say around our age because that plays a big part. Sure older people have complications. That is "considered the norm" But it seems that Vince and I are more special than I thought. Special how? Well, just to start with, I have yet to find in all of the people I have connected with, someone being diagnosed as young as Vince. He was diagnosed at 6 months old. Very very rare. I have met people whose child was diagnosed as a baby, but no one has "beaten" his 6 month mark. Even all of his doctors are amazed still to this day when we remind them how old he was when he was diagnosed. On to his complications. I have not connected with anyone that is around our age (late 20s - early 30s) that has as many complications as Vince does. Why does he have so many complications? We ask ourselves this from time to time. He looks back to his care as a child. He saw his pediatrician for his diabetic care until around the age of 16. That is probably one factor. Pediatricians are not trained to handle the specifics of Diabetes. Then he began seeing an Endocrinologist around age 17 or so. He began to use his first Minimed insulin pump. After a year or so, he had to go back to injections because the pump was causing infections on and under his skin. He stayed on shots for a few years after. As with any child growing up with diabetes, he had a few years in his teen/young adult life that he wasn't as diligent with his care as he should have been. But these years were short and he soon took charge, all the while, his A1C's remained near what they are today; 6-7%. So all of that being said, we are left with the same question and no answer: why does he have so many complications? His complications began in his mid 20s and became more prevalent by 30. I am sure a few of the factors I have mentioned have contributed, but I refuse to believe that they are the sole reason he is so sick today. There is a small part of me that believes he may just be "one in a million" with this disease. Diagnosed so young and dealing with so many serious complications so young. I just have yet to find another story even similar to ours. Yes, it is more than comforting to connect with the DOC. It has done me wonders. But at the end of the day I am still left frustrated that once again, we seem to be in this category all alone.